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FAQ

Next Meeting: Dr Mohammed Al-Ubaydli, Patient-Centred Medical Data

23rd May, 2018

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Care Information Exchange

Dr Al-Ubaydli will talk about the Care Information Exchange<ref>Care Information Exchange Building an online record of your health, for you and those involved in your care </ref>. This is an exciting initiative that helps the NHS make sure that patients receive the best care and to helps them to more in control of your health. It provides secure online access to medical records for them and for health and social care professionals. The underlying technology for the Care Information Exchange was developed by Patients Know Best, Dr Al-Ubaydli's medical records portal. Imperial Health Charity has provided funding for the system, which currently is being rolled out in North West London. Currently, only selected groups of patients and professionals are starting to use the Care Information Exchange. As the system coverage is increases, more and more patients will be invited to access their own records through a web-based application.

For more information, please refer to this Economist Magazine article.

Patients Know Best

Dr Al-Ubaydli set up Patients Know Best<ref>Patients Know Best</ref> (PKB) in 2008 with the object of unifying access to medical records. The system is not an electronic records service, but a tool that stitches such records together. Patients authorise their doctors to write in their PKB file, thus creating one centralised record. Dr Al-Ubaydli has stated that his firm is not the 'Facebook of patient medical records" and emphasises that the firm does not sell any data.

Dr Al-Ubaydli has said that we are now witnessing the “Reformation moment” for the health-care industry, in which “the laity get access to their records and can interpret them for themselves”. He is not alone. “Why isn’t everyone doing this?” asks Sam Smith of medConfidential, a medical-data privacy group. Mr Smith is also excited about the way the new companies approach consent for data use. Rather than the NHS approach requiring patients to opt out if they do not want their data to be shared, in using PKB patients can explicitly opt in if they are happy to pass their data to researchers.



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Dr Al-Ubaydli

Dr Mohammad Al-Ubaydli is the CEO of Patients Know Best, which he founded in 2008. He trained as a physician at the University of Cambridge; worked as a staff scientist at the National Institutes of Health; and was a management consultant to US hospitals at The Advisory Board Company. Mohammad is the author of seven books, including Personal health records: A guide for clinicians and Streamlining Hospital-Patient Communication: Developing High Impact Patient Portals. He is also an honorary senior research associate at UCL medical school for his research on patient-controlled medical records. In 2012 he was elected an Ashoka Fellow as a social entrepreneur for the contributions he has made to patient care.

Month Day of Month Speaker Title
February 21st Dr James Luke Recent Developments in Artificial Intelligence
March 14th Mr Simon Wright Gene Editing and Intellectual Property Law
April 25th Prof David Howey Energy storage technologies - batteries and beyond
May 23rd Dr Mohammed Al-Ubaydli Patient-Centred Medicine
June 12th Dr Vinton G Cerf Google and the Internet
September 18th Mr Romain Kidd 3D Printing
October 15th Prof Paul Newman Mobile Autonomy
October 28th Dr Gary McLean Towards a Vaccine for the Common Cold

2019 Programme

Provisional dates for 2019 are as follows:

Month Day of Month Speaker Title
January 23rd
February 27th
March 27th
April 24th
May 29th
June 26th
September 18th
October 23rd
November 27th